“Williams Syndrome is a rare genetic condition — so rare, in fact, that few people have ever heard of it.”
So began an ABCNews.com article from June 9, 2011, a day before “20/20″ ran a comprehensive story on Williams Syndrome. Now, partly because of these stories, awareness of the condition has increased dramatically, creating various benefits for those with Williams Syndrome as well as their families and doctors.
“Awareness has skyrocketed, for a relatively rare syndrome,” said Terry Monkaba, executive director of the Williams Syndrome Association (WSA). Affecting one in 7,500 newborns, Williams Syndrome (WS) causes a combination of ebullience, empathy, fearlessness, linguistic and musical talent, elfin features, heart conditions and bad teeth.